15 hours ago
“How did you receive your child’s diagnosis?” It’s Monday, so I’m back with a group of advocate mamas as we answer questions about raising our little world changers. >>> There are two points in time when you can receive a diagnosis of Down syndrome - prenatally (while pregnant) and postnatally (at or after birth).
>>> I was newly pregnant, less than 10 weeks, when we got the news (which came from a blood test). Truth is, the way we were told was pretty awful - the information we were given about Down syndrome was terribly inaccurate. I’ve actually written all about it for @themightysite (link in bio). But the bigger truth, the more important truth, is that it didn’t change anything for us. We knew our baby. We loved him. >>> We sought out better information than what we were given on that first phone call, accurate information. In those early weeks of pregnancy, we found our footing and our tribe, an incredible community of parents like us, raising extraordinary kids. I’m a planner, meticulous about it really, so knowing in advance (for me) meant I could research and connect and organize and collect resources and stories and, well, plan. >>> And the biggest truth: Wyatt is the best thing that’s ever happened to me, and if I could go back and tell my pregnant self something, it would be this:
“Listen to the MUSTN'TS, child,
Listen to the DON'TS
Listen to the SHOULDN'TS
The IMPOSSIBLES, the WONT'S
Listen to the NEVER HAVES
Then listen close to me-
Anything can happen, child,
ANYTHING can be.”
>>> I love hearing from other families, so tell me, how did you find out that your little one had a little extra? And follow #tellmeyourdiagnosisstory to see what other parents have to say!